Research Studies and Clinical Trials

Management of Myelomeningocele Study (MOMS) - a study to determine whether prenatal (before birth) or postnatal (after birth) closure of a myelomeningocele is more advantageous to the long-term prognosis of a child with spina bifida; Vanderbilt University Medical Center in Nashville, TN, is one of only three participating centers nationwide

 

Lumbar to Sacral Ventral Nerve Re-Routing - testing of a surgical procedure that may "effectively treat urinary retention and incontinence as a result of spinal cord injury or spina bifida"; existing funding has been exhausted, but applications are being made for additional grants; this study is only being performed at William Beaumont Hospital in Michigan

 

Article: "Hospital Performs Breakthrough Nerve Surgery"

 

Article: "Beaumont sees results in nation's 1st urinary nerve rewiring surgeries for spina bifida patients"

 

Article: "Gaining Control: Beaumont announces results of ground-breaking nerve-rerouting surgery"

 

Interview: "Making the Bladder Work" - The video window is on the right hand side. There's a short advertisement and quick segment on dentistry before the segment with Beaumont's patients begins.

 

Paper: "Early Exposure to Latex Products Mediates Latex Sensitization in Spina Bifida..." - "This study demonstrates that patients with spina bifida (congenital spinal cleft) have, in addition to their high latex exposure rates, a disease-associated propensity to mount latex-specific IgE antibodies upon latex contact."

 

Article: "Biofilms May be Responsible for Recurring Bladder Infections" - Findings from scientists at Washington University School of Medicine in St. Louis on how bacteria cause UTIs

 

Article: "Johnson and Johnson Bladder Drug Needs Stronger Caution" - Documents released by the U.S. Food and Drug Administration indicate that "Ditropan needs stronger cautions about the risk of hallucination and similar problems in children and older patients".

 

ClinicalTrials.gov - "a registry of federally and privately supported clinical trials conducted in the United States and around the world"

 

Spina Bifida Resource Research (SBRR) - a federally funded project, hosted by Texas A&M, to study the causes of spina bifida and anencephaly