Welcoming Babies with Spina Bifida - "a message of hope and support for new and expectant parents"
MedlinePlus: Medical Dictionary - great research tool from the U.S. National Library of Medicine and the National Institutes of Health
DisabilityInfo.gov - Your online connection to the federal government's disability-related information and resources
Disaboom - "the first comprehensive, evolving source of information, insight, and personal engagement for the disability community"
Poems about Special Needs Parenting - links to some really touching poetry about raising a special needs child; this is a personal website of a mother in Massachusetts whose son has spina bifida and hydrocephalus
Pain Assessment Tools - tools for use in measuring pain levels, based on behavioral observations and physical responses
HealthCare Transitions - resources to assist in transitioning health care responsibilities from the parent to the young adult
SB_Parents' Bookmarks - an extensive array of links to various aspects of spina bifida compiled by another parent of a SB child
How to Teach Babies Sign Language - an article by Rachel Coleman, host and creator of Signing Time!
Checklist for Working With Schools - A list of items to check and/or discuss with school staff, provided by the Kennedy Krieger Institute
Article: New Independence For People With Spina Bifida - talks about Chicago's Anixter Village, a residence for young adults with SB
Article: Trying Life on For Size - Chicago Tribune Magazine's Sept 2007 article about young adults with spina bifida who reside at Anixter Village
The SANDI Project - "A five year, $5 million dollar collaborative research project between the University of Houston, The Hospital for Sick Children in Toronto, Canada, and several other Houston hospitals. The project aims to analyze and aid neurobehavioral outcomes in in children, adolescents, and adults with spina bifida.
YouTube - Mozart Piano Concerto 17 Dezsö Ránki, Piano - mvt 1, part 1 - The conductor of the orchestra (Dezsö Ránki) has spina bifida